“Spoonie”: Someone with a chronic illness. I could explain it to you myself but I really love the original blog post. The author shared this with a friend when she didn’t understand why her energy was so limited.
Click here to read Christine Miserandino’s explanation of Spoon Theory.
And for those who want to know now (even though this source is not always accuarate) Wikipedia defines it better than I could. Or at least in less words.*
“The spoon theory is a disability metaphor used to explain the reduced amount of energy available for activities of daily living and productive tasks that may result from disability or chronic illness. Spoons are a tangible unit of measurement used to track how much energy a person has throughout a given day.”
*I still highly recommend reading her post.
G-PACT: the definition of awesome. Just kidding but they are pretty amazing for bringing awareness, so that maybe we can get funding for research and hopefully one day finding a cure. They have a bunch of resources and I just quite honestly love them.
You can find them here. You can also find them on twitter @4GPACT.
If you ever decide to make a donation… not asking you to but sharing reliable resources to do so…. go to this foundation. Honestly, they are the only one I trust. They even have a nifty “DONATE NOW” button.
**I am not affiliated with any of these groups. I just think they are awesome. Nor am I requesting donations in any way.
Last but certainly not least, The Feeding Tube Awareness Foundation. These people make such a huge difference. There are a lot of people that have frustrations with dealing with medical supply questions and by no means are they doctors but they provide resources that help you get pointed in the right direction. They also take donations.
I have had unopened formula and supplies before that I wasn’t using and asked them if I could donate it (medical supply companies do not accept supplies returned from patients) and they said absolutely and pointed me to the right direction.
There are as you may know many people that cannot afford supplies or it greatly helps if they could get a little extra help.
Come check out an awesome resource from Diamond Headache Clinic. It’s a really neat slideshow that informs us about migraines and how they can begin in children and much more! Find it here. Or you can go under my resources tab and click “Learn About Migraines!”