Hello? Is Anyone Out There? Can You Hear Me?

Hello? Is Anyone Out There? Can You Hear Me?

This isn’t word for word from the movie Titanic but the idea is there. I kind of feel like there is an entire ship full of people out in the ocean and I am rowing in the little boat asking if anyone is there, if anyone can hear me.

I have my family and a couple of friends but they have lives and they shouldn’t stop living them because I feel alone.

Let’s talk about the fear of creating new friendships. That is a huge thing for me. Why should I try to make new friends when they always have stuff to do and soon enough get tired of me having to bail on plans we made?

That makes for a very lonely world. I will most likely continue rowing in that boat yelling for friendship if I keep this thought process.

Here enters the question of how does someone who feels completely isolated make new friends? Question number two is, how does one keep said friends? There are so many questions that I don’t have the answers to.

I feel like I am learning how to make friends all over again. That was a skill I was taught in Pre-K and Kindergarten and refined over the years of school. Now, I am back to the remedial class of friendship.

It brings great anxiety. I don’t want to put myself out there and set myself up for isolation again. I don’t want to get my hopes up. If I don’t have expectations I won’t get disappointed, right? WRONG!! I am already disappointed. It’s hard feeling alone but I am the only one that can do something about it.

What do you think? Is it that easy to keep yourself from making friends? Or to make friends?

This has been on my mind for a few days now. Do any spoonies have any thoughts on this? Anyone else have thoughts on this? What would you want from a friend with a chronic illness?

Until next time, everyone.

 

6 thoughts on “Hello? Is Anyone Out There? Can You Hear Me?

  1. I find it very hard to reach out to make new friends – in fact I would rather not! I’m all for “talking” with “new friends” on-line who can truly relate to what I’m going through but other than that I limit myself to the people who have stuck by my. Being alone becomes the norm – a sad norm but that’s the reality. Recently I got together with a group of old friends – we went out for lunch (lol – I’ve not eaten solid food since Thanksgiving). I sat there enjoyed the conversation and I purposely ordered a sandwich just because I didn’t want to have to re-explain that solid food hasn’t been part of my diet in almost a year. I’m thankful for the friends I have and for the ones that really “listen” to me when I talk about this illness. I’m also very thankful for website like this one that gives us friends who understand 🙂

    1. Erin. Thank you for this comment. I have to say that I have been struggling with the decision to keep this blog going or not but this just reassured me that I am doing the right thing. I feel alone. We all do. It’s nice to have people even if they aren’t in person people. So thank you!

  2. Thank you!!! I can’t begin to express how helpful it is to know that there are others who struggle with the same thoughts feelings symptoms that this illness creates.

  3. I don’t mean to intrude on anyone’s post, but not sure where to post.
    I’m looking for for some insight from others with GP. I haven’t been officially dx’d due to my crazy high deductible for the test.
    I’ve been suffering for about five years. It all started with severe gallbladder attacks. I didn’t have any stones, but it was only functioning at 5% so they removed it.
    Since then I have not been able to eat raw veggies, nuts, seeds, or coconut consistently. Other foods can be random. Today I took a couple bites of a Subway sandwich and had what I refer to as an attack. I’ve eaten plenty of these sandwiches without issues. I’ve also had issues before so I never know what to eat. 🙁

    A couple years ago I couldn’t keep any food down. Accupuncture helped the vomitting. Nothing helps the pain. I don’t see much about the pain anywhere. My pain level is severe & debilitating. It can last up to 4 hours after eating high fiber. I’m very careful with what I eat, but make high priced mistakes!!

    Do any of you have the severe pain? My daughter gave me a bite of her Questbar & told me it was nut free. (She thought it was) . I was stuck in my car in a parking lot fo 2 hours…unable to move. I wanted to die. I was also sweating profusely. I vomited a lot too.

    Thanks for taking the time to read.

    1. Hey there! The struggle for diagnosis is real! It’s so hard! As far as symptoms… there is such a large variety and they go from on extreme to another. Some people experience ungodly pain some don’t. Most are somewhere in between. I would love to talk to you more about it. There is just too much to reply. Please email me. abbey@spooniemeetsworld.com
      I am so happy to answer questions you have and if I can’t answer them I will try to find someone who can. I am not a doctor but I have been living this nightmare for 5 years since diagnosis 6 or more trying to figure it out.

    2. P.S. There are plenty of Facebook groups that are out there. A lot of them are willing to add if you are pending diagnosis.

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